Lola Lee Perez passed away from Alpers' Syndrome on Sept. 11, 2012 when she was just 2 years old. (Courtesy Friends of Lola Perez Facebook page)
Palm Harbor, Florida -- A local restaurant is stepping up in a big way to help a family in need who recently lost their daughter to an incurable genetic disease.
Lola Lee Perez was diagnosed with POLG1, Alpers' Syndrome a little over a year after she was born on Dec. 22, 2009. The disease attacks the central nervous system and there is no cure or way to slow it down. Those diagnosed usually die within the first 10 years of their life and Lola was no exception. She passed away the night of Sept. 11 this year.
Her family needs help with paying for the medical bills left behind so Peggy O'Neill's in Palm Harbor has stepped up and will hold a "For The Love of Lola Lee" Benefit Party on Saturday, Oct. 13 from 3 - 9 p.m. The restaurant will donate every dollar spent on food and drink directly to the family.
Lola's grandparents are Palm Harbor residents, John and Danita Beck of Beck Graphics, and the niece of Don Hurt, owner of Your Claim to Frame.
There will also be a dunk tank, face painting, a 50/50 raffle, a Lucky Balloon Number Sale and silent auction.
There will also be live entertainment by several bands. See the lineup below:
3:00 - Cory McHugh
3:45 - Headless Axe
4:30 - Bambooda
5:15 - Freelow
6:00 - The Love Tribe
6:45 - Shoeless Soul
7:30 - Rick Klein
8:45 - Noah Broe and The Groove Co.
If you can't make the event, donations can also be sent to Ted Friedinger, 1114-B Florida Avenue, Palm Harbor, FL 34683. Checks should be made payable to "Lola Perez".
For more information, visit Friends of Lola Lee Perez's Facebook page.